Avaliação da qualidade de vida relacionada à saúde em indivíduos com fissura labial e/ou palatina e seus familiares

• Ano de defesa: 2013
• Autor(a) principal: Oliveira, Rosany Larissa Brito de
• Orientador(a): Silva, Luiz Carlos Ferreira da
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal de Sergipe
• Programa de Pós-Graduação: Pós-Graduação em Ciências da Saúde
• País: BR
• Palavras-chave em Português: Fenda labial; Fissura palatina; Qualidade de vida
• Palavras-chave em Inglês: Cleft lip; Cleft palate; Quality of life
• Área do conhecimento CNPq: CNPQ::CIENCIAS DA SAUDE
• Link de acesso: https://ri.ufs.br/handle/riufs/3919

Introduction: The nonsyndromic orofacial cleft is the fourth birth defect and the most common craniofacial malformation. Problems such as anxiety, depression, difficulty in coping with the malformation diagnosis and meet the special needs of these children are quite common, affecting thereby the quality of life of the fissured individuals and their families. Objective: The aim of this study was to evaluate the Health Related Quality of Life (HRQoL) in individuals with cleft lip and/or palate (CLP) and their relatives. Methodology: It was performed a descriptive, observational, cross-sectional, in the largest referral facility for service individuals with cleft in Sergipe state. For this research, we selected three groups, with 97 subjects each: Individuals with cleft, Family and Control. Initially, the cognitive evaluation was performed with the Mini-Mental State Examination, and in individuals with sufficient cognitive capacity, It was applied the MOS 36 item Short-Form Health Survey (SF-36), to evaluate HRQoL. The SF-36 was delivered to the cleft individuals, their relatives and to the control group. It was self-administered to the individuals with formal education. For the five individuals that were illiterate the SF-36 was applied as an interview. Results: It was observed in this study that individuals with CLP, mostly, had primary education, were single, with incomes between one and two minimum wages and little more than a half of these were individuals with transforamen cleft (59.8%). Moreover, there was no significant difference in the overall HRQoL score in the three groups (cleft: 72.2; family: 70.6; control: 72.5). However, when It was analyzed the SF-36 domains, some significant differences were found. In the vitality domain, individuals with cleft had higher average than the control and the family groups. In the emotional domain, the control group showed a greater mean that the individuals with cleft and that the family. The males had higher averages in the physical function and mental health domains. Individuals operated in optimal time (≤ 12 months) had higher mean in the physical function domain. Conclusion: We conclude that the Health Related Quality of Life was similar among individuals with CLP, their family and the population control. But when analyzing the SF-36 domains, it was observed that the family and the CLP individuals had lower mean in the emotional aspects domain when compared with the control population. Furthermore, patients with cleft lip and / or palate females had a lower HRQoL.