Representações sociais do estigma e do preconceito na constituição da identidade social dos adolescentes com epilepsia de difícil controle medicamentoso

• Ano de defesa: 2016
• Autor(a) principal: Muszkat, Regina Silvia Alves [UNIFESP]
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal de São Paulo (UNIFESP)
• Palavras-chave em Português: epilepsy; social representations; stigma; prejudice; adolescence; social identity; epilepsia; representações sociais; estigma; preconceito; adolescência; identidade social
• Link de acesso: https://sucupira.capes.gov.br/sucupira/public/consultas/coleta/trabalhoConclusao/viewTrabalhoConclusao.jsf?popup=true&id_trabalho=4746102; https://repositorio.unifesp.br/handle/11600/46761

This exploratory qualitative study aimed to identify the formation, according to adolescents with epilepsy and their families, of the social representations about the prejudice and stigma in the composition of the social identity of these adolescents and their possible interference in the execution of daily activities and social participation. The observations are thorough: analysis of medical records; a structured questionnaire; home visits and semi-structured interviews with the patient and family. The Bardin Content Analysis is used as an evaluation tool and results are organized as six categories to allow for deepening and correlation of data. The results are: the details of which would be the main social representations inherent prejudice and stigma related epilepsies in the universe of the studied adolescents; the impact of representations on the personal and social identity of these in their family dynamics, in situations of loss of otherness; and finally, we try to understand how and to what extent the social representations, competing with their own seizures, are responsible for the challenges and/or impediments with regard to skill, ability and motivation, when facing the implementation of tasks and social participation of these young people.