Longitudinalidade e continuidade do cuidado à criança/adolescente com doença crônica e sua família nos serviços de saúde

• Ano de defesa: 2014
• Autor(a) principal: Nóbrega, Vanessa Medeiros da
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal da Paraí­ba; BR; Enfermagem; Programa de Pós-Graduação em Enfermagem; UFPB
• Palavras-chave em Português: Saúde da criança; Saúde do adolescente; Doença crônica; Assistência à saúde; Child´s health; Adolescent´s health; Chronic disease; Health care; CIENCIAS DA SAUDE::ENFERMAGEM
• Link de acesso: https://repositorio.ufpb.br/jspui/handle/tede/5134

Longitudinality and continuity of care are essential attributes for the effective follow-up of the child/adolescent with chronic disease and his or her family by enabling the poor viewpoint that associates health services only to healing care of the disease. The general objective of the study was to analyze the longitudinality and the continuity of care devoted to the child/adolescent with chronic disease. The specific ones were to analyze the understanding of health professionals and managers on the health care of the child/adolescent with chronic disease and his or her family; and to analyze the caretakers perception in relation to the longitudinality and the continuity of care devoted to the child/adolescent with chronic disease. It is a qualitative research based on the methodological reference of Dialectical and Historical Materialism with focus on longitudinality and the continuity in order to know the reality of these attributes in the working process related to the health attention network devoted to the care of the child/adolescent with chronic disease. A total of 32 individuals, being 12 family members, 14 health professionals and 6 managers, participated in different phases of the research, from February to October 2013. Data collection was started in a hospital which is reference in the treatment of these illnesses for the state of Paraíba. Semi-structured interviews with health professionals were carried out and family members of child/adolescent with chronic disease were identified so as to take part in focus group or in the semi-structured interview. Family members, who lived in the studied municipality, were invited to contribute to the second phase of the research by authorizing the visit and the qualitative analysis of the professionals records in the hospital chart and of the Family Health Units (FHUs) registered in field diary and interview with health professionals of the FHU of its coverage area. Semi-structured interviews with managers from the municipality were also carried out with the purpose to complete the participants´ framework of this specific reality. The conclusion of the empirical collection followed the sufficiency criterion and the theme analysis consubstantiated the material organization with data triangulation of different sources. The study was guided by the Resolution number 466/12 and it obtained approval opinion number 184.351 and the Certificate of Presentation for Ethical Consideration (CPEC) number 11444412.8.0000.5183. Longitudinality and continuity of care devoted to the child/adolescent with chronic disease present meaningful fragilities in programmatic, institutional and personal levels that bring considerable vulnerabilities for those who undergo the process of chronic condition in the attention network and that need to be evaluated in the daily actions. It was observed that health attention to the child/adolescent with chronic disease is weakened in regard to management, locus of planning of the public policies and the programmatic actions. Therefore, there are several obstacles to continuity of care devoted to the child/adolescent with chronic disease and his or her family. Horizons concerning care need to be widened in regard to this population from a major visibility on behalf of both the public policies and the health actions because the continuity of care, to be carried out in the attention network, will only be mobilized if all individuals are involved in the process.