Qualidade de vida relacionada à saúde das crianças e adolescentes com hanseníase

• Ano de defesa: 2020
• Autor(a) principal: Almeida, Michelle Veiga de
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal de Mato Grosso; Brasil; Faculdade de Enfermagem (FAEN); UFMT CUC - Cuiabá; Programa de Pós-Graduação em Enfermagem
• Palavras-chave em Português: Hanseníase; Criança; Adolescente; Qualidade de vida; CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM; Hansen's disease; Children; Adolescent; Quality of life
• Link de acesso: http://ri.ufmt.br/handle/1/6064

ABSTRACT: Objective: To analyze the health-related quality of life of children and adolescents with leprosy, living in the cities of Cuiabá and Várzea Grande in the state of Mato Grosso. Method: Analytical cross-sectional study with 185 children and adolescents and 184 parents living in the metropolitan region of Cuiabá. The case group (n = 37) considered children and adolescents registered with leprosy in the National System of Notifiable Diseases of Mato Grosso (SINANMT), from 2017 to 2019, and as a comparison group (n = 148) children and healthy adolescents living in the same region of residence as the reported cases. Data collection took place from October 2019 to February 2020. Data were obtained from the SINAN-MT records, medical records from the Primary Health Care Units, forms with sociodemographic, cohabitation, clinical, epidemiological and immunological information, and through interviews using the Pediatric Quality of Life Inventory (PedsQL 4.0). Results: variables related to the profiles of children with leprosy: prevalence in the 13 to 18 age group (67.50%; n = 27) and in the male gender (54.01%; n = 20), 97.30% ( n = 36) belonged to the most unfavorable socioeconomic level (C/D and E); 75.70% (n = 28) were diagnosed as multibacillary; 5.40% (n = 2) had a degree of disability (GIF1) and 90.90% (n = 30) were not assessed for GIF at discharge; About 43.20% (n = 16) lived with more than five people at home; 91.90% (n = 34) had a family history of leprosy and 78.40% (n = 29) were contacts of people with the disease; 8.10% (n = 3) of the children had the second BCG vaccination scar. As for the variables related to health-related quality of life (HRQoL) of the children and adolescents analyzed: the internal consistency through Cronbach's alpha coefficient was greater than 0.70 in all dimensions of the domains and summaries in both groups; QOL scores were significantly lower than healthy controls in all domains, with schoolchildren being the most affected with a mean of 57.54 (SD ± 22.44) in self-assessment and a mean of 58.89 (SD ± 23.52) in parents' perception, and the social domain had a higher QoL score, with an average of 87.23 (SD ± 19.42) and 98.11 (SD ± 5.90) between healthy cases and control, respectively. There was a moderate correlation between leprosy patients in the physical and social domains (r = 0.538; p <0.001), psychosocial (r = 0.568; p <0.001) and strong in the total score (r = 0.809; p <0.001). In the control group, there was no correlation between the physical domain and the others. There was a strong and statistically significant correlation in multibacillary cases, when compared to paucibacillaries in the total score with the physical domain (r = 0.846; p <0.001). Conclusion: The HRQoL of children and adolescents with leprosy is worse when compared to healthy individuals. The school domain was the most affected, in the self-assessment and in the parents' perception. It is noteworthy in view of the findings that HRQoL must be included as an essential requirement for the planning of priority actions to health in leprosy, in order to contribute to the reduction of incident cases of the disease and to prevent physical, emotional, social and school damage, often irreparable