Manejo familiar no cuidado à criança em condição crônica egressa da Unidade de Terapia Intensiva Neonatal: um estudo de métodos mistos

• Ano de defesa: 2022
• Autor(a) principal: Melissa Joice de Abreu Felizardo
• Tipo de documento: Tese
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal de Minas Gerais; Brasil; ENF - DEPARTAMENTO DE ENFERMAGEM MATERNO INFANTIL E SAÚDE PÚBLICA; Programa de Pós-Graduação em Enfermagem; UFMG
• Palavras-chave em Português: Enfermagem; Enfermagem Familiar; Cuidado da Criança; Doença Crônica; Manejo Familiar; Dissertação acadêmica
• Link de acesso: http://hdl.handle.net/1843/54074

The chronic condition in childhood requires continuity of care from the family over time, with actions that include surveillance and monitoring of the different needs and demands of children. This study aimed to analyze family management in the care of children with a chronic condition discharged from the NICU (Neonatal Intensive Care Unit) from the perspective of family members, in the light of the Family Management Style Framework. It is a mixed study of the convergent parallel type (QUAN-QUAL), having the Family Management Style as a theoretical framework. Family members of children with chronic conditions from a Neonatal Intensive Care Unit in southeastern Brazil participated. At the time of the interview, the children were aged between 2 years and 2 years 11 months and 29 days. For the collection of quantitative data, the instrument Family Management Measure – FaMM and a questionnaire of sociodemographic characterization were used. Quantitative data were analyzed using the statistical program Stata 15. Qualitative data were produced through semi-structured interviews and submitted to Directed Content Analysis. The project was approved by the Research Ethics Committee (CEP) of the Federal University of Minas Gerais with a favorable opinion 3,508,414 and opinion 4,103,704; and the Ethics Committee of Hospital Sofia Feldman/ Integral Health Assistance Foundation with favorable opinion 3,550,836 and opinion 4,112,532. The participation of 53 families of children with chronic conditions from the NICU, 34 children from the Philantropic Hospital (64.15%) and 19 children from the Federal Hospital (35.85%) participated. Most children were male (66.04%), with a mean age (in years) of 2.73 years. Based on the convergences and divergences of qualitative and quantitative data, families focus on the perspective of the normality of the child with a chronic condition, to minimize the impacts arising from caring for the child at home. The chronic condition still needs to be accepted by family members and, as part of their view of the impact of the condition, it can be a hindrance to family management. The couple's support and partnership are present in the sharing of care actions. Most families found it easier to meet the care needs of a child with a chronic condition at home. Favorable social and economic conditions contributed to the family's ability to care for a child with a chronic condition. Faced with the need for long-term care at home, many mothers, considered the main caregivers, left their services to fully dedicate the care to the child. It is concluded that families have a positive view of the situation of caring for children with chronic conditions who leave the NICU at home. Although each family is unique, they perceive care for children with a chronic condition in a similar way, normalizing their condition. There is a relationship between the family's life context and the ability to manage a child with a chronic condition. Being able to count on a partner or other family members can improve the management of these families. Thus, it is necessary for nursing to be present in the family context as a source of support and promoting necessary interventions to maintain the functioning of the family unit.