Influência de um programa de educação sobre o conhecimento das mães de crianças com paralisia cerebral e síndrome de Down

• Ano de defesa: 2009
• Autor(a) principal: RIBEIRO, Maysa Ferreira Martins
• Orientador(a): PORTO, Celmo Celeno
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal de Goiás
• Programa de Pós-Graduação: Mestrado em Ciências da Saúde
• Departamento: Ciências da Saúde - Medicina
• País: BR
• Palavras-chave em Português: mãe, família, paralisia cerebral, síndrome de Down, conhecimento
• Palavras-chave em Inglês: mother, family, cerebral palsy, Down syndrome, knowledge
• Área do conhecimento CNPq: CNPQ::CIENCIAS DA SAUDE
• Link de acesso: http://repositorio.bc.ufg.br/tede/handle/tde/1766

This is a dissertation in the scientific article modality. In the first article, published in the Revista Ciência & Saúde Coletiva under the title Cerebral palsy and Down syndrome: parents level of knowledge and information, a narrative review of the literature was undertaken, using cerebral palsy, Down syndrome, knowledge, family as descriptors. Scientific publications from 1993 to 2008 were used and of the 57 studies found, 16 were selected. All showed that parents receive little information and have many questions, especially with regard to the education, prognosis and possibilities of treatment for their child. In addition, parents demand emotional support and look for better guidance. Consequently, it could be concluded that there is a scarcity of investment in a family approach and in education for health. In the second article, submitted to the journal Disability & Rehabilitation under the title The influence of an educational program on the knowledge of mothers of children with cerebral palsy and Down syndrome, the impact of an educational program on knowledge of mothers in relation to their child‟s disability was evaluated. It was a longitudinal and prospective study carried out at the Associação de Pais e Amigos dos Excepcionais de Goiânia. Of the 58 mothers who participated, 28 had children with cerebral palsy and 30 were mothers of Down syndrome children. The level of mothers‟ knowledge was evaluated through two questionnaires, each containing 19 questions on a Likert type scale. The questionnaires were filled in at the beginning and at the final phases of an educational program drawn up with the aim of enhancing the mothers‟ knowledge. The following conclusions were reached: a) there was no difference between the knowledge of the groups of mothers who participated in the educational program and those who did not; b) the educational program significantly enhanced the knowledge of the group of mothers of children with cerebral palsy when the initial and final phases were compared; c) there was no correlation between differences in knowledge at the initial and final phases and the variables: mother‟s age, mother‟s schooling, child‟s age and family income. It was also seen that even though many mothers‟ opinions agreed with the scientific literature, doubts and divergences still remain in relation to the themes investigated. These results point to the need for educational intervention from the moment of diagnosis right through the whole developmental process of the child