Diagnóstico de demência: mudanças ocorridas na família e o processo de enfrentamento do cuidador familiar

• Ano de defesa: 2018
• Autor(a) principal: Cesário, Luciana Maria Santos
• Orientador(a): Chariglione, Isabelle Patriciá Freitas Soares
• Tipo de documento: Dissertação
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Católica de Brasília
• Programa de Pós-Graduação: Programa Stricto Sensu em Gerontologia
• Departamento: Escola de Saúde e Medicina
• País: Brasil
• Palavras-chave em Português: Família; Cuidador; Demência; Acolhimento
• Palavras-chave em Inglês: Caregiver; Dementia; Family; Caring
• Área do conhecimento CNPq: CNPQ::CIENCIAS DA SAUDE
• Resumo em Inglês: This work deals with the phenomenon of dementia syndromes and, specifically, the care that family members perform in the face of a diagnosis of dementia, because the family is the main institution that provides care to the elderly. The objective of this study was to verify how the changes occurred in the family when dealing with the constant exercise of caring for the elderly with dementia. The interview was carried out through a semi-structured interview, a sociodemographic questionnaire and a caregiver overload scale - Zarit Burden Interview, with caregivers frequently attended by the Centro Multidisciplinar do Idoso, Hospital Universitário de Brasília. Quantitative-qualitative analysis was also used, such as changes in family life and perceptions about care. To analyze statistically as qualitative answers of the questionnaire, the IRAMUTEQ software was used. At the first stage, the results were as follows: In the Descending Hierarchical Classification (DHC) there are four classes: Time (25%), Knowledge (33%), Consequences (22%) and Causes (19.4%); both in the Similitude Analysis (SA) and in the Word Cloud (WC), the word No prevailed. At present, in DHC, six classes, Current time (13.70%), General causes (15.70%), Time future (13.70%), Shares (17.60%), Consequences (23.50%). %) and immediate causes (15.70%). The SA and WC, continue to indicate more frequently the expression No. For quantitative measures, the software SPSS was used. The results pointed to those responsible for accountability in the majority of women (75%), wives (62%), main leaders (87.5%), in the age group of the elderly (60-75 years). Assessment of the contribution scored a moderate to severe phase (75%). It was concluded that caring for a relative with a diagnosis of dementia has direct implications for family caregivers, daughters, spouses, and especially family caregivers who directly face the aging process.
• Link de acesso: https://bdtd.ucb.br:8443/jspui/handle/tede/2448

This work deals with the phenomenon of dementia syndromes and, specifically, the care that family members perform in the face of a diagnosis of dementia, because the family is the main institution that provides care to the elderly. The objective of this study was to verify how the changes occurred in the family when dealing with the constant exercise of caring for the elderly with dementia. The interview was carried out through a semi-structured interview, a sociodemographic questionnaire and a caregiver overload scale - Zarit Burden Interview, with caregivers frequently attended by the Centro Multidisciplinar do Idoso, Hospital Universitário de Brasília. Quantitative-qualitative analysis was also used, such as changes in family life and perceptions about care. To analyze statistically as qualitative answers of the questionnaire, the IRAMUTEQ software was used. At the first stage, the results were as follows: In the Descending Hierarchical Classification (DHC) there are four classes: Time (25%), Knowledge (33%), Consequences (22%) and Causes (19.4%); both in the Similitude Analysis (SA) and in the Word Cloud (WC), the word No prevailed. At present, in DHC, six classes, Current time (13.70%), General causes (15.70%), Time future (13.70%), Shares (17.60%), Consequences (23.50%). %) and immediate causes (15.70%). The SA and WC, continue to indicate more frequently the expression No. For quantitative measures, the software SPSS was used. The results pointed to those responsible for accountability in the majority of women (75%), wives (62%), main leaders (87.5%), in the age group of the elderly (60-75 years). Assessment of the contribution scored a moderate to severe phase (75%). It was concluded that caring for a relative with a diagnosis of dementia has direct implications for family caregivers, daughters, spouses, and especially family caregivers who directly face the aging process.