Needs of Families with a Member with Neuromuscular Pathology: Functional Dimension

• Main Author: Marques, Tiago
• Publication Date: 2023
• Other Authors: Moutinho, Lídia, Fernandes, Maria, Guedes, Virgínia, Ferreira, Maria, Figueiredo, Maria, Marques, Anita
• Format: Article
• Language: por
• Source: Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
• Download full: https://doi.org/10.37914/riis.v6i1.216
• topic: Saúde da Família; Doenças Neuromusculares; Enfermagem; Necessidades; Family Health; Neuromuscular Diseases; Nursing; Needs; Salud de la Familia; Enfermedades Neuromusculares; Enfermería; Necesidades de Servicios de Salud

Background: meeting the needs of families with a member who has a Neuromuscular Disorder (ND), enables an improvement in their quality of life, minimizing the possibility of illness and allowing greater family contribution to their functions. Objectives: characterize the needs of families with a member who has a ND in the functional dimension. Methodology: a quantitative, descriptive, cross-sectional study was carried out with an intentional sample of 30 families. The operative matrix of the Dynamic Model of Family Assessment and Intervention (MDAIF) was used as a data collection instrument. Data processing and analysis were performed by descriptive statistics. Results: most members who have a ND are dependent on self-care, clothing, hygiene and using the bathroom; families have saturation of home care role and caregiver role. Conclusion: family nurses will be able to help families by creating programs that allow: -the readjustment of family roles where there is saturation; -the possibility of working and supporting caregivers; -specific training regarding the people who have a ND.