Detalhes bibliográficos
Ano de defesa: |
2014 |
Autor(a) principal: |
Sousa, Eulange de
 |
Orientador(a): |
Medeiros, Marcelo
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Banca de defesa: |
Medeiros, Marcelo,
Silva, Maria Sebastiana,
Bezerra, Ana Lúcia Queiroz,
Valdez, Diane,
Pinheiro, Veralucia |
Tipo de documento: |
Tese
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Tipo de acesso: |
Acesso aberto |
Idioma: |
por |
Instituição de defesa: |
Universidade Federal de Goiás
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Programa de Pós-Graduação: |
Programa de Pós-graduação em Ciências da Saúde (FM)
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Departamento: |
Faculdade de Medicina - FM (RG)
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País: |
Brasil
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Palavras-chave em Português: |
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Palavras-chave em Inglês: |
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Área do conhecimento CNPq: |
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Link de acesso: |
http://repositorio.bc.ufg.br/tede/handle/tede/5374
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Resumo: |
Sickle cell anemia is an inherited disease considered a public health problem in Brazil. In Brazil, it is estimated that there are more than 2 million people affected by some form of this anemia, with 3.500 new cases occurring every year. This dissertation aims to understand the meanings present in the relations established between children and adolescents with sickle cell anemia and professionals within the health services. The methodological choice of this study was the Social Strategic Qualitative Research and it took place at a Teaching Hospital. Data were collected through semi-structured interviews with 3 children, 5 adolescents and 9 health professionals. Data were analyzed through the content analysis technique. From the interviews with children and adolescents, the following categories emerged: the disease, the professionals, and the treatment in other services. From the interviews with health professionals, the following categories emerged: child, adolescent, mother-family, professionals from other services, the disease, and what to do. The research conducted indicated that it is necessary to engage children and adolescents in decisions related to their health-disease process. It also indicated that, in order to achieve it, the health professionals training have to include elements that enable professionals to consider children and adolescents as protagonists in their healthdisease process. In addition, it demonstrated the occurrence of institutional violence in the health treatment that patients with sickle cell anemia receive, as they have their autonomy, their subjectivity and their speech prevented and annulled. |