O sujeito com Síndrome de Christ-Siemens-Touraine ou Displasia Ectodérmica Hipoidrótica : adolescência, corporeidade e subjetividade

• Ano de defesa: 2017
• Autor(a) principal: Ferrari, Marlinda Gomes
• Tipo de documento: Tese
• Tipo de acesso: Acesso aberto
• Idioma: por
• Instituição de defesa: Universidade Federal do Espírito Santo; BR; Doutorado em Educação; Centro de Educação; UFES; Programa de Pós-Graduação em Educação
• Palavras-chave em Português: Education; Christ-Siemens-Touraine syndrome or Hypohidrotic Ectodermal Dysplasia; Subjectivity; Corporeity; Éducation; Syndrome de Christ-Siemens-Touraine uu Dysplasie Ectodermique Hypohidrotique; Subjéctivité; Corporéité; Adolescence; Corporeidade; Educação; Síndrome de Christ-Siemens-Touraine ou Displasia Ectodérmica Hipoidrótica; Educacíon; Subjetividad; Corporeidad; Síndrome De Christ-Siemens-Touraine o Displasia Ectodérmica Hipohidrótica.; Adolescência; Displasia ectodérmica; Educação especial; Fenomenologia existencial; Síndromes; Subjetividade; 37
• Link de acesso: http://repositorio.ufes.br/handle/10/8530

This thesis aims to comprehensively describe the process of identity-subjective constitution of a young student diagnosed with the rare syndrome known as Christ-Siemens-Touraine or Hypohidrotic Ectodermal Dysplasia, enrolled in a federal school of Technical Education Integrated to High School. In relation to the development of this research, it was decided to take as input the theoreticalphilosophical assumptions of the socio-historical approach, based on the theoretical contributions of Vygotsky, Bakhtin and Merleau-Ponty. From qualitative nature the methodology Case Study was used by Phenomenologicalexistential way. The procedures for the production of data were given by means of interviews and informal conversations with the central individual of the study, his family members and people of his social and school life; and autobiographical records and data collected through social networks and online interactions. Considering the narratives and records, it was chosen to present the data produced following the chronological order, since these ones showed the process of identity-subjective constitution of the adolescent. The analysis of the data was made from the dialogue with the basic theorists of this thesis. Considering the central objective, it was possible to enter into the person's life trajectory and to understand how the subject's gaze affects the subjective constitution of bio psychosocial and cultural being, influencing his self-image, self-esteem and selfconcept. In addition, the study revealed the need for the school and the professionals working in it to give visibility to the individual independently of his/her organic conditions, viewing him/her as a socio-historic-cultural being.