Detalhes bibliográficos
| Ano de defesa: |
2014 |
| Autor(a) principal: |
Lopes, Fernanda de Souza
 |
| Orientador(a): |
Martinelli, Maria Lúcia |
| Banca de defesa: |
Não Informado pela instituição |
| Tipo de documento: |
Dissertação
|
| Tipo de acesso: |
Acesso aberto |
| Idioma: |
por |
| Instituição de defesa: |
Pontifícia Universidade Católica de São Paulo
|
| Programa de Pós-Graduação: |
Programa de Estudos Pós-Graduados em Serviço Social
|
| Departamento: |
Serviço Social
|
| País: |
BR
|
| Palavras-chave em Português: |
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| Palavras-chave em Inglês: |
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| Área do conhecimento CNPq: |
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| Link de acesso: |
https://tede2.pucsp.br/handle/handle/17701
|
Resumo: |
The economic, cultural, political, technological, and social development of Brazil, since the 1990s, has been accompanied by a growing aging population faced with chronic diseases. The promulgation of the Federal Constitution in 1988 made it possible to consolidate a number of social rights that contributed to this scenario. In the public health realm, over the years, palliative care has grown in significance, establishing itself as a form of targeted assistance to individuals with severe, advanced disease that threatens the continuity of life. Despite the importance of palliative care, the scholarship on the topic has not grown proportionally. In this study, based upon the available literature and our everyday professional experience in the practice of palliative care, we discuss the importance of this type of care for both, patients and their families. In the quest for making death as painless and dignified as possible, Palliative Care advocates for extending care to the family, given its crucial role in assisting a relative who is ill, in imminent death. In this study, we briefly address the consolidation of the Brazilian social protection system and the institutionalization of Palliative Care, focusing on the standardization of its services and on how over time its conception of family has changed. Currently, the family is considered a key player in providing care for its members. Our main goal is to analyze the process by which family caregivers, in conjunction with a tertiary sector of the public health system in São Paulo city, assist patients in palliative care. Based on interviews made with family members, we presented the conditions under which the daily practice of care providing is determined. We uncovered that in these families, the possibility of care provision is linked to individual issues related to internal dynamics, such as personal experiences, relationships, religion and/or spirituality, as much as to external factors, like assistance from the health care team, access to a support network and to public policies. It is our understanding that the possibilities and limitations of family care giving are continually shaped by the elements mentioned above |
