EULAR points to consider for patient education in physical activity and self-management of pain during transitional care
| Main Author: | |
|---|---|
| Publication Date: | 2024 |
| Other Authors: | , , , , , , , , , , , , , , , , , , , , , , , , |
| Format: | Article |
| Language: | eng |
| Source: | Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) |
| Download full: | http://hdl.handle.net/10362/177553 |
Summary: | Publisher Copyright: © European Alliance of Associations for Rheumatology, EULAR 2024. |
| id |
RCAP_cd9f1ca64964e7e5fc7e823bda8474b7 |
|---|---|
| oai_identifier_str |
oai:run.unl.pt:10362/177553 |
| network_acronym_str |
RCAP |
| network_name_str |
Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) |
| repository_id_str |
https://opendoar.ac.uk/repository/7160 |
| spelling |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional careArthritis, JuvenileChildNursingPainPsychologyRheumatologyImmunology and AllergyImmunologyBiochemistry, Genetics and Molecular Biology(all)Publisher Copyright: © European Alliance of Associations for Rheumatology, EULAR 2024.Objectives A EULAR task force was convened to develop points to consider (PtC) for patient education in physical activity and self-management of pain in young people with juvenile-onset rheumatic and musculoskeletal diseases during transitional care. Methods A task force of 26 people from 10 European countries followed the EULAR Standardised Operating Procedures to establish overarching principles (OAPs) and PtC based on a literature review and expert consensus. Level of evidence (LoE), grade of recommendation (GoR) and level of agreement (LoA) were determined. Results Two OAPs and seven PtC were formulated. The OAPs highlight the importance of personalised transitional care in rheumatology, ideally based on shared decision-making and incorporate interactive education to empower young individuals in managing their physical activity and pain. The PtC emphasise the clinical importance of patient education in these areas to improve readiness to transfer from paediatric to adult care. For two PtC, the GoR was moderate (grade B), based on individual cohort study (LoE 2b). For the remaining five PtC, the GoR was weak (grade D), based on expert opinion (LoE 5). The LoA among the task force was high, ranging from 9.4 to 9.8, except for one PtC that was 8.7. Conclusion These EULAR PtC establish guidance on best practices for delivering patient education in physical activity and self-management of pain during transitional care in rheumatology. The adoption of these PtC in clinical settings is recommended to standardise and optimise transitional care across European healthcare systems. Additionally, the task force expects that these PtC will drive future research and potentially shape policies across Europe.NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)RUNCourel-Ibáñez, JavierPrieto-Moreno, RafaelBriones-Vozmediano, EricaAriza-Vega, PatrocinioAngevare, SaskyaAnton, JordiBini, IlariaClemente, DanielCorreia, MatildeCostello, WendyDe Cock, DiederikDomján, AndreaLeon, LeticiaMarques, AndréaMinden, KirstenMourão, Ana FilipaNajm, AurélieOzen, SezaPimentel, GeorginaSaleem, ZainabVetrovsky, TomasWulffraat, Nico M.Crovato, Andrea ZacariasPrior, YelizCarmona, LoretoEstévez-López, Fernando2025-01-16T21:22:39Z20242024-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/177553eng0003-4967PURE: 106839168https://doi.org/10.1136/ard-2024-226448info:eu-repo/semantics/openAccessreponame:Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)instname:FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologiainstacron:RCAAP2025-04-14T01:38:09Zoai:run.unl.pt:10362/177553Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireinfo@rcaap.ptopendoar:https://opendoar.ac.uk/repository/71602025-05-28T19:40:31.693653Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) - FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologiafalse |
| dc.title.none.fl_str_mv |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| title |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| spellingShingle |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care Courel-Ibáñez, Javier Arthritis, Juvenile Child Nursing Pain Psychology Rheumatology Immunology and Allergy Immunology Biochemistry, Genetics and Molecular Biology(all) |
| title_short |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| title_full |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| title_fullStr |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| title_full_unstemmed |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| title_sort |
EULAR points to consider for patient education in physical activity and self-management of pain during transitional care |
| author |
Courel-Ibáñez, Javier |
| author_facet |
Courel-Ibáñez, Javier Prieto-Moreno, Rafael Briones-Vozmediano, Erica Ariza-Vega, Patrocinio Angevare, Saskya Anton, Jordi Bini, Ilaria Clemente, Daniel Correia, Matilde Costello, Wendy De Cock, Diederik Domján, Andrea Leon, Leticia Marques, Andréa Minden, Kirsten Mourão, Ana Filipa Najm, Aurélie Ozen, Seza Pimentel, Georgina Saleem, Zainab Vetrovsky, Tomas Wulffraat, Nico M. Crovato, Andrea Zacarias Prior, Yeliz Carmona, Loreto Estévez-López, Fernando |
| author_role |
author |
| author2 |
Prieto-Moreno, Rafael Briones-Vozmediano, Erica Ariza-Vega, Patrocinio Angevare, Saskya Anton, Jordi Bini, Ilaria Clemente, Daniel Correia, Matilde Costello, Wendy De Cock, Diederik Domján, Andrea Leon, Leticia Marques, Andréa Minden, Kirsten Mourão, Ana Filipa Najm, Aurélie Ozen, Seza Pimentel, Georgina Saleem, Zainab Vetrovsky, Tomas Wulffraat, Nico M. Crovato, Andrea Zacarias Prior, Yeliz Carmona, Loreto Estévez-López, Fernando |
| author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) RUN |
| dc.contributor.author.fl_str_mv |
Courel-Ibáñez, Javier Prieto-Moreno, Rafael Briones-Vozmediano, Erica Ariza-Vega, Patrocinio Angevare, Saskya Anton, Jordi Bini, Ilaria Clemente, Daniel Correia, Matilde Costello, Wendy De Cock, Diederik Domján, Andrea Leon, Leticia Marques, Andréa Minden, Kirsten Mourão, Ana Filipa Najm, Aurélie Ozen, Seza Pimentel, Georgina Saleem, Zainab Vetrovsky, Tomas Wulffraat, Nico M. Crovato, Andrea Zacarias Prior, Yeliz Carmona, Loreto Estévez-López, Fernando |
| dc.subject.por.fl_str_mv |
Arthritis, Juvenile Child Nursing Pain Psychology Rheumatology Immunology and Allergy Immunology Biochemistry, Genetics and Molecular Biology(all) |
| topic |
Arthritis, Juvenile Child Nursing Pain Psychology Rheumatology Immunology and Allergy Immunology Biochemistry, Genetics and Molecular Biology(all) |
| description |
Publisher Copyright: © European Alliance of Associations for Rheumatology, EULAR 2024. |
| publishDate |
2024 |
| dc.date.none.fl_str_mv |
2024 2024-01-01T00:00:00Z 2025-01-16T21:22:39Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10362/177553 |
| url |
http://hdl.handle.net/10362/177553 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
0003-4967 PURE: 106839168 https://doi.org/10.1136/ard-2024-226448 |
| dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
| eu_rights_str_mv |
openAccess |
| dc.format.none.fl_str_mv |
application/pdf |
| dc.source.none.fl_str_mv |
reponame:Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) instname:FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia instacron:RCAAP |
| instname_str |
FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia |
| instacron_str |
RCAAP |
| institution |
RCAAP |
| reponame_str |
Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) |
| collection |
Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) |
| repository.name.fl_str_mv |
Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) - FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia |
| repository.mail.fl_str_mv |
info@rcaap.pt |
| _version_ |
1833598250090758144 |