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Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9

Bibliographic Details
Main Author: Sales, Célia M. D.
Publication Date: 2017
Other Authors: Neves, Inês T. D., Alves, Paula G., Ashworth, Mark
Format: Article
Language: eng
Source: Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
Download full: http://hdl.handle.net/10451/29879
Summary: © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
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spelling Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9Individualised PROMSOutcome assessmentPatient-centred outomePatient-generated measuresThematic analysis© 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.Background: There is increasing interest in individualized patient-reported outcome measures (I-PROMS), where patients themselves indicate the specific problems they want to address in therapy and these problems are used as items within the outcome measurement tool. Objective: This paper examined the extent to which 279 items reported in an I-PROM (PSYCHLOPS) added qualitative information which was not captured by two well-established outcome measures (CORE-OM and PHQ-9). Design: Comparison of items was only conducted for patients scoring above the "caseness" threshold on the standardized measures. Setting and patients: 107 patients were participating in therapy within addiction and general psychiatric clinical settings. Main Results: Almost every patient (95%) reported at least one item whose content was not covered by PHQ-9, and 71% reported at least one item not covered by CORE-OM. Discussion: Results demonstrate the relevance of individualized outcome assessment for capturing data describing the issues of greatest concern to patients, as nomothetic measures do not always seem to capture the whole story.This study was partially funded by two research fellowships, one of them awarded to CS by the Center for Psychology at the University of Porto, Portuguese Foundation for Science and Technology (FCT UID/PSI/00050/2013) and EU FEDER and COMPETE programmes (POCI-01-0145-FEDER-007294), and the second awarded to PA by the Portuguese Foundation for Science and Technology (FCT SFRH/BD/87308/2012)John Wiley and SonsRepositório da Universidade de LisboaSales, Célia M. D.Neves, Inês T. D.Alves, Paula G.Ashworth, Mark2017-11-29T15:01:05Z20172017-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/29879engHealth Expectations. 2017;1–51369-762510.1111/hex.12652info:eu-repo/semantics/openAccessreponame:Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)instname:FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologiainstacron:RCAAP2025-03-17T13:45:06Zoai:repositorio.ulisboa.pt:10451/29879Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireinfo@rcaap.ptopendoar:https://opendoar.ac.uk/repository/71602025-05-29T02:53:05.774776Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) - FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologiafalse
dc.title.none.fl_str_mv Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
title Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
spellingShingle Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
Sales, Célia M. D.
Individualised PROMS
Outcome assessment
Patient-centred outome
Patient-generated measures
Thematic analysis
title_short Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
title_full Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
title_fullStr Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
title_full_unstemmed Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
title_sort Capturing and missing the patient's story through outcome measures : a thematic comparison of patient-generated items in PSYCHLOPS with CORE-OM and PHQ-9
author Sales, Célia M. D.
author_facet Sales, Célia M. D.
Neves, Inês T. D.
Alves, Paula G.
Ashworth, Mark
author_role author
author2 Neves, Inês T. D.
Alves, Paula G.
Ashworth, Mark
author2_role author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Sales, Célia M. D.
Neves, Inês T. D.
Alves, Paula G.
Ashworth, Mark
dc.subject.por.fl_str_mv Individualised PROMS
Outcome assessment
Patient-centred outome
Patient-generated measures
Thematic analysis
topic Individualised PROMS
Outcome assessment
Patient-centred outome
Patient-generated measures
Thematic analysis
description © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
publishDate 2017
dc.date.none.fl_str_mv 2017-11-29T15:01:05Z
2017
2017-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/29879
url http://hdl.handle.net/10451/29879
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Health Expectations. 2017;1–5
1369-7625
10.1111/hex.12652
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv John Wiley and Sons
publisher.none.fl_str_mv John Wiley and Sons
dc.source.none.fl_str_mv reponame:Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
instname:FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia
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reponame_str Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
collection Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
repository.name.fl_str_mv Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) - FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia
repository.mail.fl_str_mv info@rcaap.pt
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