Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses

Bibliographic Details
Main Author: van Munster, Marlena
Publication Date: 2021
Other Authors: Stümpel, Johanne, Thieken, Franziska, Pedrosa, David, Antonini, Angelo, Côté, Diane, Fabbri, Margherita, Ferreira, Joaquim J, Růžička, Evžen, Grimes, David, Mestre, Tiago
Format: Article
Language: eng
Source: Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
Download full: http://hdl.handle.net/10451/49063
Summary: © 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
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spelling Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nursesParkinson nurseParkinson’s diseaseIntegrated careMultidisciplinary careNursing trainingPersonalized care© 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).Delivering healthcare to people living with Parkinson's disease (PD) may be challenging in face of differentiated care needs during a PD journey and a growing complexity. In this regard, integrative care models may foster flexible solutions on patients' care needs whereas Parkinson Nurses (PN) may be pivotal facilitators. However, at present hardly any training opportunities tailored to the care priorities of PD-patients are to be found for nurses. Following a conceptual approach, this article aims at setting a framework for training PN by reviewing existing literature on care priorities for PD. As a result, six prerequisites were formulated concerning a framework for training PN. The proposed training framework consist of three modules covering topics of PD: (i) comprehensive care, (ii) self-management support and (iii) health coaching. A fourth module on telemedicine may be added if applicable. The framework streamlines important theoretical concepts of professional PD management and may enable the development of novel, personalized care approaches.This research was funded by the Canadian Institutes of Health Research/EU Joint Programme - Neurodegenerative Disease Research, grant number 01789-000/HESOCARE-329-073.MDPIRepositório da Universidade de Lisboavan Munster, MarlenaStümpel, JohanneThieken, FranziskaPedrosa, DavidAntonini, AngeloCôté, DianeFabbri, MargheritaFerreira, Joaquim JRůžička, EvženGrimes, DavidMestre, Tiago2021-07-22T15:31:54Z2021-06-302021-06-30T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/49063engJ Pers Med. 2021 Jun 30;11(7):623.10.3390/jpm110706232075-4426info:eu-repo/semantics/openAccessreponame:Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)instname:FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologiainstacron:RCAAP2025-03-17T14:35:41Zoai:repositorio.ulisboa.pt:10451/49063Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireinfo@rcaap.ptopendoar:https://opendoar.ac.uk/repository/71602025-05-29T03:16:35.045396Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) - FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologiafalse
dc.title.none.fl_str_mv Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
title Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
spellingShingle Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
van Munster, Marlena
Parkinson nurse
Parkinson’s disease
Integrated care
Multidisciplinary care
Nursing training
Personalized care
title_short Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
title_full Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
title_fullStr Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
title_full_unstemmed Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
title_sort Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
author van Munster, Marlena
author_facet van Munster, Marlena
Stümpel, Johanne
Thieken, Franziska
Pedrosa, David
Antonini, Angelo
Côté, Diane
Fabbri, Margherita
Ferreira, Joaquim J
Růžička, Evžen
Grimes, David
Mestre, Tiago
author_role author
author2 Stümpel, Johanne
Thieken, Franziska
Pedrosa, David
Antonini, Angelo
Côté, Diane
Fabbri, Margherita
Ferreira, Joaquim J
Růžička, Evžen
Grimes, David
Mestre, Tiago
author2_role author
author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv van Munster, Marlena
Stümpel, Johanne
Thieken, Franziska
Pedrosa, David
Antonini, Angelo
Côté, Diane
Fabbri, Margherita
Ferreira, Joaquim J
Růžička, Evžen
Grimes, David
Mestre, Tiago
dc.subject.por.fl_str_mv Parkinson nurse
Parkinson’s disease
Integrated care
Multidisciplinary care
Nursing training
Personalized care
topic Parkinson nurse
Parkinson’s disease
Integrated care
Multidisciplinary care
Nursing training
Personalized care
description © 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
publishDate 2021
dc.date.none.fl_str_mv 2021-07-22T15:31:54Z
2021-06-30
2021-06-30T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/49063
url http://hdl.handle.net/10451/49063
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv J Pers Med. 2021 Jun 30;11(7):623.
10.3390/jpm11070623
2075-4426
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv reponame:Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
instname:FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia
instacron:RCAAP
instname_str FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia
instacron_str RCAAP
institution RCAAP
reponame_str Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
collection Repositórios Científicos de Acesso Aberto de Portugal (RCAAP)
repository.name.fl_str_mv Repositórios Científicos de Acesso Aberto de Portugal (RCAAP) - FCCN, serviços digitais da FCT – Fundação para a Ciência e a Tecnologia
repository.mail.fl_str_mv info@rcaap.pt
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